This page outlines non-RCOG roles and opportunities that may interest our Fellows and Members. See also all current RCOG opportunities.
Current non-RCOG opportunities
Surveys that would benefit from your input will, from time to time, be published here.
Twin-to-twin transfusion syndrome (TTTS)
Twin-to-twin transfusion syndrome (TTTS) is a rare but life-threatening condition that affects 10–15% of monochorionic twins. If left untreated, 90% of babies are likely to die. There is currently no comprehensive outcome data collected and published in the UK for doctors to compare the effectiveness of treatments for TTTS.
The Twins And Multiple Births Association (TAMBA) has partnered with St George’s Hospital and other fetal medicine centres to set up a UK-wide registry of all TTTS pregnancies, their treatments and outcomes. The registry will:
- Help to build a true picture of TTTS cases, survival rates and outcomes in the UK
- Provide a tool to help improve clinical skills and practice
- Help to provide better patient care at a local, regional and national level
- Establish a platform to allow long-term follow-up of TTTS survivors showing longer-term neurodevelopmental outcomes.
- Provide invaluable data for future research into TTTS
The registry was launched in October 2015 and is the first of its kind. Since then, twin anaemia polycythemia sequence (TAPS), twin reversed arterial perfusion sequence (TRAPS) and intrauterine growth restriction (IUGR) have been added.
To add your fetal medicine centre to the registry, please contact Dr Asma Khalil: