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New NICE guideline on Cystic Fibrosis: diagnosis and management published

We are happy to announce the publication of the NICE guideline on Cystic Fibrosis developed by the National Guideline Alliance (NGA).

This guideline covers the diagnosis and management of Cystic Fibrosis in children, young people and adults. It specifies how to monitor the condition, how to manage the symptoms and how to improve the quality of life for those with Cystic Fibrosis.

There are also recommendations about treating the most common infections in people with Cystic Fibrosis, preventing cross-infection, service organisation, and information and support.

Cystic Fibrosis (CF) is a multi-system genetic disorder affecting the lungs, pancreas, liver and intestines. It can have a significant impact on life expectancy and quality of life.

Cystic Fibrosis: diagnosis and management [NG78]

Read the new guideline on the NICE website

Diagnosis is primarily made during newborn screenings. The median age at diagnosis is 2 months, and 1 in every 2500 babies born in the UK has Cystic Fibrosis. Approximately 60% of people on the UK cystic fibrosis registry are aged over 16 years.

"Cystic Fibrosis: diagnosis and management " [NG78] is now published on the NICE website.


About the NGA

About the NGA

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