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National HMB Audit: making clinical audit data transparent

In his transparency and open data letter to cabinet ministers on 7 July 2011, the Prime Minister made a commitment to make clinical audit data available from the national audits within the National Clinical Audit and Patient Outcomes Programme.

The following information is being made available:

  • Audit participation by English NHS acute trusts
  • Measures about patient use of primary care, symptom burden and quality of life at first outpatient visit

NHS trusts are identified by name. The figures don’t relate to any individual patient, nor do they contain any patient-identifiable data.

Data from the National HMB Audit Third Annual Report

Download data files and data descriptions of the following data from the National HMB Audit Third Annual Report (PDF, 1.72 mb):

The data is also available on data.gov.uk.

All NHS acute trusts in England are included.

Data was collected from women by questionnaire at their first outpatient visit between 1 January 2011 and 29 February 2012 and again one year after the first outpatient visit .

Data from the HMB Audit Second Annual Report

Download the following data from the National HMB Audit Second Annual Report:

The data is also available on data.gov.uk.

The published information describes the data submitted to the National HMB Audit, including:

  • Patient characteristics and measures of care received in the primary care setting (number of GP visits before referral; duration of symptoms; whether or not treatment was received)
  • Patients’ quality of life, measured using the standard EQ-5D tool (a generic tool measuring general health-related quality of life) and the adapted UFS-QoL tool (a condition-specific quality of life instrument)

The First Annual Report (PDF, 3.11 mb) and Second Annual Report (PDF, 3.19 mb) of the National HMB Audit provide detailed summaries of each of these measures.

All NHS acute trusts in England are included.

Data was collected from women by questionnaire at their first outpatient appointment for symptoms of HMB in secondary care between 1 January 2011 and 29 February 2012.

Using and interpreting the data

  • Data provided in figures relates to averages for each trust.
  • The adapted UFS-QoL tool is a disease-specific tool and includes questions on severity, concern, activity, energy, control, self-consciousness and sexual functioning. The severity scores are provided as a score in their own right (scale 0–100; higher severity scores indicate greater symptom severity). The overall adapted UFS-QoL score (also defined as the Health Related Quality of Life [HRQoL] score) range from 0 to 100; however, high HRQoL scores indicate lower symptom severity.
  • The EQ-5D score is a generic non-disease-specific measure of health status.  It used widely, including in the Patient Reported Outcome Measures initiative.
  • Some figures have been adjusted to take into account differences in the patients seen at the various NHS trusts. The factors taken into account are described in the ‘explanatory notes’ sheet.
  • Where variation can be seen between NHS trusts, this variation should not be interpreted as indicating better or worse performance. Mostly, any variation seen lies within the expected ranges due to random fluctuations.

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